messageboard.4hcm.orgForums - Hypertrophic Cardiomyopathy Association™ Community

Login or Sign Up Logging in... Remember me Log in Forgot password or user name? or Sign Up Log in with Facebook If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you Search in titles only Search Advanced Search Forums Blogs Articles Groups New Topics Today's Posts Mark Channels Read Member List Calendar If this is your first visit, be sure to check out the FAQ by clicking the link above. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. As a good practice screen names should not be "full legal names" as we can not full assure your privacy from search engines if your FULL name appears on the messageboard All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. Announcement Collapse No announcement yet. Forums Collapse Forums Latest Activity My Subscriptions Collapse Filter Time All Time Today Last Week Last Month Show All Discussions only Photos only Videos only Links only Polls only Events only New Topics On Off Filtered by: Clear All new posts No content found Show More Filter Time All Time Today Last Week Last Month Show All Discussions only Photos only Videos only Links only Polls only Events only New Topics On Off Filtered by: Clear All new posts Please log in to your account to view your subscribed posts. Directory Topics Posts Last Post vBCms Comments Topics: 1 Posts: 5 Last Post: how to pair defrib with iphone 1 5 how to pair defrib with iphone by robertcladner86 09-02-2020, 12:20 PM HCMA Announcements This area is where you can find out all that is going on at the HCMA by reading the UPDATES and ANNOUNCEMENTS made by our President, Board Members and HCMA staff. You may make comment to most postings but may not start new discussions here. Use the more appropriate forum areas to start new threads. Topics: 330 Posts: 1,715 Last Post: The end of an era... time for us to sunset the message board. 330 1,715 The end of an era... time for us to sunset the message board. by Lisa Salberg 07-08-2019, 05:07 PM HCMA General Forums HCMA Discussion This area is where you can find out all that is going on at the HCMA by reading the ongoing discussions. This is also a good area to vent concerns over the disease to share your thoughts, concerns and fears with others. However, we do ask that you please direct specific questions to the appropriate forum topic area. Note : Topics may be moved to more appropriate forum areas if they become too specific. Topics: 4,287 Posts: 25,731 Last Post: Echo report 4,287 25,731 Echo report by Lisa Salberg 01-19-2021, 11:47 AM General Discussion (non-health related) Here is where you can discuss anything from current events to birthday wishes and caviar dreams. However, we request that any discussion about health or the HCMA be directed to the appropriate topic areas. Note : Topics may be moved to more appropriate forum areas if they become health related. Topics: 722 Posts: 5,350 Last Post: who should I hire for disabiity application 722 5,350 who should I hire for disabiity application by AvaWilliam 02-17-2021, 01:32 PM Ask the HCMA! This area is where you can ask any question and someone from the staff and moderator team will respond. Note : this is area is limited to only posting new questions. Replies can only be made by HCMA Moderators and Staff. Any further discussion should be made in the appropriate topic areas. Topics: 2,376 Posts: 15,911 Last Post: I would appreciate advice 2,376 15,911 I would appreciate advice by T Mac 03-07-2021, 06:59 PM Get The Word Out! Have you ever thought to yourself “what can I do to help educate the medical community about HCM”? We know many of you have and we have created a program to help YOU and your community “Get the Word OUT!” ™. Share your ideas on how to "Get the Word OUT!" in your community! Topics: 67 Posts: 282 Last Post: GO RED FOR WOMEN...... Feb 3 67 282 GO RED FOR WOMEN...... Feb 3 by Henry1122 01-04-2019, 06:53 AM Screening our Youth for HCM There has been a great deal of public debate on the role of screening children for HCM and other cardiac diseases. This is an area that would best be defined as evolving and controversial. This section of the message board is for the discussion of the concept of screening and all of the potential issues around this issue. Topics: 31 Posts: 147 Last Post: Annual kid screening and insurance 31 147 Annual kid screening and insurance by Guest 10-22-2019, 01:38 AM HCM Support Forums Family Members/Parents These posting are geared toward dealing with family issues surrounding living with HCM. Parents who are faced with the diagnosis of a child and dealing with the questions and concerns about participation in athletic events should post here. If your spouse or other loved one is diagnosed this is a wonderful place to meet others in a similar situation. Topics: 648 Posts: 6,130 Last Post: Introduction 648 6,130 Introduction by Henry1122 01-04-2019, 06:20 AM Medications Nearly all of those with HCM are on some type of medical management. Share your thoughts, questions and concerns with others regarding medications here. Topics: 874 Posts: 6,179 Last Post: Authorized Generic for Toprol-XL 874 6,179 Authorized Generic for Toprol-XL by kitab500 02-17-2021, 04:34 PM Devices (ICD,Pacer,Reveal) Those with implantable devices are invited here to share there stories of survival, implantation and life with a device. Those who may be evaluation there need for a device are welcome here to share their thoughts with those living with devices. Topics: 1,096 Posts: 8,496 Last Post: Riding motorcycle with ICD 1,096 8,496 Riding motorcycle with ICD by Bongobob 08-10-2020, 12:44 AM Septal Reduction (Myectomy/Alcohol septal ablation/other) Choosing between which procedure can be very difficult, visit here to discuss your questions and concerns with those who have already been there. Those who have had these procedures done are encouraged to visit here and help those heading down the path to septal reduction. Topics: 1,237 Posts: 15,514 Last Post: Septal Myectomy at Tufts 1,237 15,514 Septal Myectomy at Tufts by Donna B 05-31-2019,...